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It’s a Girl Thing!

Turner Syndrome (TS) results in one out of 2,000 to 4,000 live female births. Many do not result in live births. TS is a rare genetic disease that does not have a maternal or paternal component. The condition is uniquely different to each girl/woman depending on the distinctive genetic makeup. TS girls are referred to as “Butterflies” because of the X chromosome that looks like a butterfly and rare phenomenon.

Goals

TS comes with complex disease processes that requires a significant interdisciplinary team of specialists. These teams only exist in very few clinics in other states where they often travel to receive care and treatment. Care for these girls is fragmented and lacks education, even with some pediatricians and other specialists. The ultimate goal is to provide such a clinic in the South Florida area armed with commitments from volunteer specialty physicians, nurses, child life advocates, and more in one place three to four times per year.


COVID-19

This goal is currently on hold while Soaring Butterflies for Turner Syndrome in South Florida has committed to helping families in South Florida and abroad as the closest charity organization. Families are being supported by the charity to access care, medication, treatments, and the girls’ other needs due to COVID-19 and loss of family income and health insurance coverage. These girls are vulnerable to COVID-19, and many have had to stop treatments and physician visits.


Resilience and Tenacity

I created the artwork displayed in the photo for the Soaring Butterflies’ first charity walk. It was designed to not only draw attention to the pictures but to educate and inspire. The quotes displayed on the artwork are some of the girls’ favorite quotes. These girls are resilient and full of tenacity through treatments, surgeries, and life challenges in general. “Butterflies” can become nurses, doctors, architects, web designers, and anything they can dream of with access to comprehensive care and support.

Charity Giving
Soaring Butterflies for Turner Syndrome, Inc.

If you would like to donate to the Soaring Butterflies for Turner Syndrome, Inc., please use the QR code to connect to the charity’s website and the PayPal at the bottom of their homepage.  

Thank you for your support.

Liliana Poe, MSN, RN

Upsilon Chi Counselor

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From the chapter President:

As I prepare to return to Florida after the 45^th Sigma Theta Tau International Biennial Convention in Washington DC, I wanted to share with you some initial reflections.

The convention began with the flags of all the nations of chapters represented by Sigma. That procession made me immensely proud to be a member of the of an organization that promotes scholarship, leadership, and community involvement throughout the world.

While there were a variety of scholarly presentations over the first three days, I concentrated on attending sessions that would assist me in establishing a vibrant chapter of Sigma at Nova Southeastern University. I must say the staff at Sigma are amazing and provided great suggestions for activities and processes. Even with a focus on chapter activities, there were ample opportunities for me to review the scholarship of nurses throughout the world. A convention such as this provides social opportunity as well. I was able to connect with former colleagues and even a former student who recounted that I was the first one who had ever served her hummus (some things never change). In addition, new friendships and alliances were formed.

The final two days were devoted to voting. We elected the board that will carry the organization forward and on amendments to the bylaws (or rules) that govern Sigma.

The final activity was an address by the new President of Sigma, Richard Ricciardi, PhD, CRNP, FAANP, FAAN. His call to action is the thoughts that will guide the organization over the next two years, and he chose, Infuse joy! He said, “… we must find ways to infuse joy into all we do. Let us be intentional in fostering opportunities for ourselves and others to achieve greater joy.” Therefore, I ask that you look at his call to action and seek to find joy in everything you do.

Kind regards,

Holly Evans Madison, PhD, MS(N), RN